Tag: #Adrenoleukodystrophy

  • Marsha

    ADRENOLEUKODYSTROPHY – Why I will never forget this disease

    At least 2 times a year I remember Adrenoleukodystrophy: during the month of February and during the month of July. Why? Because my son was diagnosed with ALD (adrenoleukodystrophy) in 2007 and died February of 2008, he was born July 3, 1980.“Adrenoleukodystrophy (ALD) is a rare, inherited genetic disorder that impairs the body’s ability to break down very-long-chain fatty acids…